Two-way life: A caregiver’s story

I walked out of the doctor’s office, in a trance, almost forgetting that my fifteen year old, beside me, had walked through the very same door with me. The doctor had said, “Your son’s kidneys are failing!” During the fifteen-to-twenty minutes of intense conversation, the doctor had talked extensively about chronic kidney disease. Slowly he [...]

By |2025-04-09T01:53:57+00:00February 27th, 2020|Caregivers|

35+ Questions to Ask Your Healthcare Team

The sudden news of kidney disease can come as a shock for some, making it difficult to process the information. There may be instances when you want to know more but seem lost in the whole web of advice and multiple clinicians who are now involved. We wanted to provide you a checklist of questions [...]

By |2025-04-09T01:53:53+00:00February 20th, 2020|Clinician's Corner|

In Conversation Series

Janet Wright with Dr. Gavril Hercz As a nephrologist and psychotherapist, I believe it is important to shed more light on the emotional impact of chronic illness, like polycystic kidney disease (PKD), on patients and families. Last year, during the “In Conversation Series”, we shared the 2018 Toronto PKD scientific conference video, in which  Ms. [...]

By |2025-04-09T01:52:03+00:00January 23rd, 2020|Clinician's Corner|

Non-verbal messages : They are everywhere

Taking your cue from non-verbal communication Last week, during my visit to the dialysis unit, I came across a nurse who was displeased with a patient. On further conversation, she explained that she was disturbed by the manner expressed his dislike of her. This patient always wears T-shirts with strange quotes indirectly aimed at her. [...]

By |2025-04-09T02:11:54+00:00November 11th, 2019|Emotional Health|

In Conversation Series

In Conversation Series introduces a new medium in the exploration of the illness experience. We hope to have upcoming videotaped conversations with patients, caregivers and clinicians which we hope will convey these unique experiences from a variety of perspectives.

By |2025-04-09T01:58:20+00:00January 16th, 2019|Emotional Health|

Polycystic Kidney and Liver Disease and Me

At age 63 I am still not on dialysis and am privileged with a good quality of life – I work part-time, take 2 personal interest courses, enjoy hobbies, eat most food, and do a mild activity. So, what’s my problem? I think, “Well, I don’t have a problem”, especially considering how young others in [...]

By |2021-10-07T19:46:22+00:00December 13th, 2018|From The Blog|

Death and social media

In July of 2013, NPR Weekend Edition host Scott Simon began tweeting from the ICU of a Chicago hospital. For the next week, as he watched his mother’s condition worsen until her eventual passing, he shared everything from interactions with ICU nurses to his mother’s wisecracks and life lessons with his thousands of Twitter followers. [...]

By |2019-11-05T05:56:40+00:00January 18th, 2018|Caregivers|

The Trauma of Dialysis Initiation

We are happy to announce that Dr. Gavril Hercz’s article is published, in the Perspective section of JASN October 2017 28: 2835-2837. The link for the article can be found here. http://jasn.asnjournals.org/content/28/10/2835 "The trauma of dialysis initiation" discusses at length the psychosocial impact of serious medical illness, such as kidney disease, which affects not only [...]

By |2019-11-05T05:56:41+00:00October 16th, 2017|Clinician's Corner, Emotional Health|

Smartphone Apps: A Patient’s New Best Friend?

mHealth will rescue you About 1 in 10 people develop some degree of chronic kidney disease (CKD). It can occur at any age and various conditions can lead to CKD. Over 2 million people worldwide currently receive treatment with dialysis or a kidney transplant to stay alive, yet this number may only represent 10% of [...]

By |2019-11-05T05:56:41+00:00April 26th, 2017|Physical Health|

8 books to help your child deal with death

Death can be a difficult subject and most of us feel uncomfortable talking about it. Death, however, does not differentiate, being an inevitable outcome for all of us.  Personal meanings of death can vary, though. Through the ages, for most of us, the best way to deal with it was with denial. Maybe this is the reason that most [...]

By |2019-11-05T05:56:41+00:00April 3rd, 2017|Emotional Health|

Are you donating a kidney?

Is your decision well informed? Living kidney donations save many lives every year. It can be best described as the donation of a kidney from a healthy person, made of his or her own free will. Donating an organ gives you a sense of accomplishment, as you were able to save another person’s life. You [...]

By |2019-12-04T18:30:52+00:00March 23rd, 2017|Clinician's Corner|
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