Chronic illness has a way of changing the experience of attention. For people living with kidney disease, attention is often directed toward the body: blood pressure, laboratory results, fluid intake, medications, symptoms, dialysis schedules, and the next medical appointment. Even when nothing is wrong, there can be an expectation that something might be.

This persistent vigilance can become psychologically exhausting. It is difficult to become fully immersed in an activity when part of the mind remains occupied with monitoring oneself.

There is another kind of attention, however, that can be deeply restorative. It occurs when we become absorbed in something outside ourselves. We may experience it while playing music, gardening, reading, exercising, cooking, working, making something, or having a stimulating conversation. For a period of time, awareness of the self recedes. We are not thinking about how we are doing or how we appear. We are simply engaged in what we are doing.

Psychologists have described this experience as flow. It tends to arise when an activity is sufficiently demanding to require our full attention but not so difficult that we feel overwhelmed. The challenge is matched reasonably well to our abilities. We know what we are trying to accomplish, can recognize our progress, and remain engaged with the activity itself rather than constantly evaluating the outcome.

This is more than a pleasant state of concentration. There is something psychologically important about temporarily escaping the incessant awareness of oneself.

For patients with chronic kidney disease, this may have particular significance. Illness can produce a heightened form of self-consciousness. The person becomes increasingly aware of being a patient, of having a body that requires management, of being dependent upon medications or treatments, and of living with uncertainties that healthy people may rarely consider.

Dialysis can intensify this experience. Several hours each week are organized around the treatment of the body. There may be conversations about weight, blood pressure, access, laboratory results and symptoms. The patient is necessarily attentive to the body because the body requires attention. Yet psychological life becomes constricted when that is the only form of attention available.

Flow offers a counter-experience.

During an absorbing activity, attention moves outward. A pianist listens to the music rather than thinking about being a patient. Someone working on a difficult problem becomes interested in solving it rather than thinking about their diagnosis. A person painting, writing, gardening or playing a sport can become immersed in the activity itself.

This does not mean that illness disappears. Nor should flow be presented as a technique for avoiding difficult feelings. Grief, fear, anger and uncertainty remain part of the psychological reality of chronic disease. The goal is not distraction in the narrow sense. It is to preserve the capacity to inhabit other dimensions of oneself.

There is an important distinction between distraction and absorption. Distraction often means trying not to think about something. Absorption means becoming immersed in something. The first can require considerable psychological effort because the unwanted thought remains in the background. The second allows attention to become genuinely occupied.

This distinction is particularly relevant when patients are anxious. Anxiety tends to narrow attention toward possible threats. The person monitors symptoms, anticipates bad news and repeatedly imagines what might happen next. The more attention is directed toward uncertainty, the more uncertainty can dominate experience.

An absorbing activity creates a different relationship with uncertainty. It gives the mind something concrete to engage with in the present.

There is also a developmental dimension. Many adults with chronic illness gradually relinquish activities that once gave them pleasure or a sense of competence. Fatigue, treatment schedules and changes in physical capacity may make previous activities difficult. Over time, life can become organized around what illness prevents rather than what remains possible.

Finding activities that provide genuine engagement therefore becomes more than a lifestyle recommendation. It can help restore a sense of agency.

The activity does not have to be impressive or productive. In fact, an excessive emphasis on productivity can undermine the experience. The important question is whether something captures attention sufficiently that the person becomes less preoccupied with evaluating themselves.

For clinicians, this suggests a useful question that is rarely asked in a medical consultation: “What do you become completely absorbed in?”

The answer may reveal something about the patient that is invisible in the medical record. It may identify a source of competence, pleasure, curiosity or connection that has survived alongside illness. It may also point toward an aspect of identity that has become neglected.

Psychological treatment cannot remove all of the uncertainty associated with kidney disease. Nor can it eliminate the legitimate need to attend to the body. But good psychological care should make room for attention to move in the other direction as well.

A person with kidney disease is not only someone who has to monitor a body.

They are also someone who can become curious, absorbed, creative, challenged, playful and interested in the world.

Sometimes psychological health consists not in thinking less about illness, but in recovering the capacity to think about something else.

About the Author

Dr Gavril Hercz

Dr. Gavril Hercz is a nephrologist at Humber River Health and Associate Professor of Medicine, University of Toronto. He completed his psychoanalytic training at the Toronto Psychoanalytic Institute and is a member of the Canadian Psychoanalytic Society. His major area of interest is the impact of physical illness on patients, families, and caregivers.

It is difficult to become fully immersed in an activity when part of the mind remains occupied with monitoring oneself.