
Managing Illness: Beyond Utility
Illness changes a person’s relationship to time. Days become measured by appointments, symptoms, lab values, medications, waiting rooms, and uncertainty. In the midst of chronic illness, people often feel pressured to become relentlessly practical: What treatment works? What diet helps? What plan improves survival? The body becomes a problem to solve.
Yet many patients quietly discover something unexpected. What helps them endure is not always the strictly “useful” part of life.
Sometimes it is music.
Sometimes a novel.
Sometimes looking at a photo, or reading history late at night during when dealing with insomnia, or doodling absentmindedly while sitting through dialysis. These activities can seem trivial against the seriousness of illness. But they are often exactly what restores a person’s humanity when disease threatens to reduce life to mere function.
Modern medicine is built upon usefulness. We depend on science to understand the body, develop treatments, and prolong life. Few would argue otherwise. But there is another dimension of healing that medicine sometimes forgets: human beings do not live by utility alone. This concept extends beyond health care. Our world increasingly evaluates everything through the lens of productivity. Knowledge is valued if it advances careers. Leisure is justified if it improves performance. Even rest becomes something people optimize. Patients often absorb this mentality themselves. They feel guilty for inactivity, for needing rest, or for spending time on things that appear “unproductive.”
But illness frequently exposes the limitations of this way of living.
When health is disrupted, people often discover that emotional survival depends upon experiences that have no measurable output. A patient with kidney disease may sit quietly listening to a symphony before bed. Another may become fascinated by a work of fiction during chemotherapy. Someone else may read poetry while recovering from surgery. None of these activities lower creatinine or alter blood pressure directly. Yet they widen the emotional world beyond illness itself.
Without these forms of mental expansion, suffering can become claustrophobic.
There is a psychological danger in allowing life to narrow entirely around disease management. Patients understandably become preoccupied with symptoms, appointments, and fears about the future. Families can as well. Self experience contracts. Conversations become repetitive. Anxiety feeds upon itself. The mind circles endlessly around the body.
One of the most important therapeutic interventions in chronic illness is therefore not distraction, but enlargement.
A person must remain connected to something larger than the illness.
Art, literature, nature, music, philosophy, history, and curiosity all help accomplish this. They create what might be called psychological windows. Through them, patients temporarily step outside the confinement of immediate suffering and reconnect with broader human experience.
This is not escapism. It is preservation.
There is evidence that people tolerate pain and adversity differently when their inner lives remain active and expansive. Curiosity itself can become protective. Learning about the natural world, engaging creatively, or becoming absorbed in meaningful thought interrupts the repetitive self-focus that often intensifies depression and despair.
The same is true emotionally. Many people living with chronic illness feel pressure to remain positive at all times. They worry about burdening others with fear, anger, grief, or exhaustion. Yet emotional suppression rarely produces resilience. More often, it produces emotional numbness.
Real resilience involves the capacity to feel deeply without becoming entirely consumed by feeling.
This is where the arts matter profoundly. Science teaches us how organs fail and recover. Art teaches us how human beings endure uncertainty, mortality, loneliness, and hope. A novel can articulate grief that a patient could not previously name. A painting can express vulnerability more honestly than conversation. Music can hold emotions too complex for language.
In psychodynamic therapy, this matters greatly. Patients often arrive believing their distress must be solved quickly or efficiently. They want strategies, fixes, techniques. These can help. But deeper healing frequently emerges from developing the ability to remain emotionally alive rather than emotionally defended.
The ability to contemplate, reflect, imagine, and feel enlarges psychological flexibility. It softens rigidity. It restores perspective.
This may be especially important today because modern life increasingly fragments attention. Passive entertainment fills empty moments, but often leaves people psychologically undernourished. Endless scrolling rarely deepens thought or emotional understanding. In fact, it can intensify agitation, comparison, and isolation.
Human beings require forms of engagement that invite contemplation rather than constant stimulation.
Reading slowly. Listening carefully. Contemplating nature. Learning for no practical reason. All these activities cultivate an inward spaciousness that illness desperately threatens.
There is also an ethical dimension to this wider way of living. When people develop interests beyond themselves, they often become more compassionate toward others. Suffering feels less isolating when one recognizes it as part of a shared human experience rather than personal failure. History, literature, and art repeatedly remind us that vulnerability is universal.
Perhaps one of the deepest psychological tasks in chronic illness is learning not merely how to survive, but how to remain fully human while surviving. That requires more than treatment plans and technical knowledge. It requires preserving the parts of life that awaken wonder, reflection, emotional depth, and connection.
In difficult periods, during illnesses, people often search desperately for control. Yet sometimes healing begins elsewhere — in curiosity, in beauty, in contemplation, and in the permission to experience life beyond the narrow confines of utility.
About the Author
Dr Gavril Hercz
Dr. Gavril Hercz is a nephrologist at Humber River Health and Associate Professor of Medicine, University of Toronto. He completed his psychoanalytic training at the Toronto Psychoanalytic Institute and is a member of the Canadian Psychoanalytic Society. His major area of interest is the impact of physical illness on patients, families, and caregivers.
There is another dimension of healing that medicine sometimes forgets: human beings do not live by utility alone. This concept extends beyond health care.
